A newborn baby with Down Syndrome (DS) has to go through a series of tests to find out if she has a genetic disorder.
The tests are often done by trained physicians who do not speak any English and cannot give accurate answers to questions such as, ‘Have you ever had a miscarriage?’
The doctor will often ask you to repeat a few words to describe your baby’s condition.
But there are cases where the questions are a little too personal.
In one case, a woman named Sujata took the test in a nursing home in Delhi and was given an ‘A’ grade.
“I have a baby girl who is blue.
Why do I have to tell you?” she asked a nurse who was present.
Sujatia’s mother, Suresh Kumar, was in the room.
“Because you don’t know what I am talking about,” the nurse said, according to a report in The Times Of India.
“You are a doctor and I am a nurse, but you have to ask me a question.”
The nurse asked her if she had ever had an abortion.
“No, I haven’t,” Sujati said.
The nurse asked Sujatra if she knew how to pronounce ‘sir’.
“I don, but I have done my homework,” Sujam said.
“I have learnt about a lot of things.”
Sujati’s mother was not happy with Sujatoi’s answers.
“Your son has been tested at birth,” she told Sujataris mother.
“What does that mean?”
“I think that you are just saying ‘I’m sorry, I didn’t know’,” Sujatan said.
Suresh told Sujam that the doctor could have used more common questions to ask.
“He has asked you so many questions and he is asking so many things.
If he was a doctor, he would know better,” Sujaras mother said.
The doctor then asked Sujam to repeat the same question.
“Do you know what an ‘I’ is?”
Sujats mother said in her reply.
“A baby girl has an ‘o’,” Sujam responded.
“She doesn’t know how to say ‘a’ or ‘n’,” Sujuas mother replied.
Sujatia was left shocked, and then angry.
“This is my baby,” she said.
Sujam asked the nurse to stop the conversation.
Sujitatia had been given a ‘A’, but she felt that the nurse had been biased and that she was being treated unfairly.
“It was not fair that she gave me a ‘B’, and she was giving me a bad grade,” Sujeas mother told the Indian Express.
Sujatika has not been able to speak English, but her mother is still trying to communicate with the doctors.
“Even if you know a word, it is not easy to explain the meaning of a word,” she wrote on Facebook.
“There is a lot that is unknown, like the meaning, pronunciation, and grammar of words.”
According to the Centers for Disease Control and Prevention (CDC), around one in five babies are born with Down’s Syndrome in the United States.
While there is no vaccine for the disease, doctors say it is highly treatable.